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August 1st, 1990 Ha...Ha...That's what
I was saying, but I was really meaning "ouch".
Surrounded by doctors, nurses, residents, and interns I felt
I was a show for all. There I was with my pants down and my butt
crack smiling at all the medical staff. I squirmed around
uncomfortable with a big smile on my face, cracking jokes to make
the situation not so embarrassing. I was 14 at the time. In 3 days I
was going to be 15. It was the summer of 1990 and the next fall I
was going to be a sophomore in high school. Pretty exciting event
for a girl graduating from jr. high. So why was I in a hospital? Why
was this doctor poking into my hip?
All I could feel was an intense pulling sensation from my
hip. What was he doing? They called this procedure a bone marrow
aspiration. Events occurring the weeks before brought me to this
moment. My blood tests were showing a low red blood cell count. I
was what they called anemic.
After one last grand pull, the doctor was through. I looked
around a little red in the face at all the eyes looking over at me,
looking at my butt. I couldn't think of really what to do or say so
I just laughed. The only people that had ever seen my butt were my
parents when I was a baby and even that thought was too disturbing.
I just wanted to get out of there and move on with my summer life. I
really didn't want to be in a doctor's office on such a sunny day.
What kid, teenager, adult, human would?
The doctor sent me to room where my sister and I sat and
talked about what had just happened. My sister's name is Angela but
we all call her Haji. I know, I know, that's the boy on the cartoon
show Johnny Quest but somehow someway it just fit her. As it
happened she was stuck with it and is still stuck with it to this
day.
We just sat in the clinic room hoping to get out of there as
soon as possible. My parents were outside the room with the doctors.
The door was opened and I turned my head and noticed my mother
crying. I stared hesitantly hoping it was just because of a large
medical bill for my strip show, which they should be paying me for.
My dad, mom, and the doctor all noticed me staring at them
and quickly shut the door. I asked my sister what she though could
be wrong.
"Maybe your sick" Haji said.
"Uh..... Oh, ya think?" I snapped back.
Soon after our tiny discussion, the doctor came in and closed
the door behind him. The doctor had a kind face and when I looked at
him it was the kind of face that made me want to cry because his
eyes were so sincere. I just knew he was going to have to tell me I
was going to die or something. My parents were not with him. He sat
down next to where I was laying and looked at me for a moment and
started discussing the known symptoms I had been having.
Fainting, lightheadedness, unstoppable bleeding, bruising,
etc. In my head I was thinking "yeah..yeah..yeah...tell me something
I don't all ready know."
Well he sure did and this is when the words came that my ears
so unwillingly heard, "Stacey, you have a life threatening disease
called Leukemia".
LEUKEMIA!?!? Now, I had heard about Leukemia before. I mean you see
that kind of stuff on TV and learn about that word in school, but
that was for older people. People who had all ready lived their
lives. I knew this disease had to be bad. You can always hear about
it on the news and media. This whole thing had to be a joke. I was
probably on Candid Camera or something. But what kind of sick joke
is that?
T
he doctor said he'd let me be alone for awhile. When he left, my
sister Haji and I started laughing. I don't know why. I guess it was
just out of nervousness or maybe my way of coping to make a serious
situation not so big of a deal. But deep inside, I knew it was.
I looked at Haji, and whispered with a confused stare, "What is it?
What is Leukemia anyways?"
She said back ever all so knowingly, and being 3 years younger than
me, "That's what happens when your hair falls out and then you die."
I couldn't believe it. My hair was going to fall out? But when? Was
I going to be bald forever? Oh yeah, and I was going to die too. My
hair, my life! How could this be, I was so young. Even though I had
just heard this terrible news, we were still laughing about it. It
was funny, not that this terrible thing had happened but that it was
happening, to me of all people! I discussed with my sister how maybe
it wouldn't be so bad to die. I loved the water and I loved water
slides and I was determined that there was a Raging Waters in heaven
(this was a local water park near our house.) I decided that death
wouldn't be that bad if that was the case.
Haji and I discussed this for awhile then the doctor came back in. I
asked him with finally tears in my eyes "Am I really going to die?"
The doctor stated back "We are going to do everything we can not to
let that happen Stacey". He then told me that
Leukemia could be cured. I responded to him saying "I'm not going to
die then!"
I was determined at this time that I was not ready to die yet. I
mean I was still a kid. I hadn't done anything yet. I wanted to
graduate from high school, college, and get married someday and have
my own children. This disease was not going to rob me of my
childhood or my chance to live as an adult. I was stern in saying
this to the doctor. He looked at me and smiled and said, "Let's
discuss the therapy."
Chemo!! What is that? So they tell me they are going to pump me up
with poison? I was put on a random study selection to find out what
medical protocol I would receive to beat this thing that had
uninvitably taken over my body. Just like a lottery drawing, only
this determined my fate if I was to live or die. My lotto ticket
gave me a 2-year plan of chemotherapy and twice a month spinal taps
rather than radiation.
The hospital wanted to admit me that day because my body was in so
much need of blood. I needed a blood transfusion quickly. They
wanted to wheel me, I wanted to walk. I looked on the wall and
noticed a drawing of four bald children. I shuddered and couldn't
help but think that was going to me.
As I walked towards my admittance room, I looked into another unit a
few doors down. I couldn't help but stare at a girl about my age,
pale, sickly, and with a few strands of what used to be a full head
of hair. She was sitting in a dark room, staring off into space. I
figured that she must be a cancer patient too.
As I was getting settled, I chose not to think about it all and feel
sorry for myself. Instead, I joked with my nurses and my family and
when people started coming to visit I joked with them too. I wasn't
sick, I was still normal and I was going to prove it.
The nurse told me they needed to prepare my body for chemotherapy.
It had to be cleansed. They first gave me blood. YUCK! But after it
entered my body I couldn’t help but feel 10 times better than I had
been feeling weeks before. It pumped me with warmth, stability, and
I could finally sit up without those damn headaches.
I slept fairly well that night. My mother stayed at the hospital
with me. The next day they started me on chemotherapy. It didn't
feel so bad at first. But by the time the chemo stopped pumping into
me, I felt as though I had the worst case of the flu imaginable.
After a few buckets, and a few naps I felt better.
At one moment, there were no visitors with me. The nurse came into
my room and asked me if I wanted to visit with another girl my age
who had cancer as well. I thought sure, why not. So I went. It was
the same girl I saw the day before as I was walking to my room. As
I walked into her room I felt great. She's the one that looked sick
not me. I sat down at the bottom of her bed. I introduced myself and
from that point on I didn’t say much else. She opened her mouth and
I listened. Listened terrified. She was diagnosed a couple months
before me.
She looked at my sternly and exclaimed, "Yeah, its' terrible. Your
hair falls out, your friends leave you, they don't care, you get
really fat, you can't stop throwing up, and you become all alone".
I terrifyingly jumped up, said goodbye and ran out of there as fast
as I could. The nurses watched me as I jumped onto my bed and I
started crying and shaking. This is the first time I finally
realized what was really going on and started grieving. This was
something serious and it was something terrible. I was horrified.
Before it was kind of fun. I was getting presents, attention, and a
challenge that didn't seem like a big deal. Now it did. The next day
I was to turn15. I didn't feel happy, I felt upset. It was summer.
I wanted to be at the water parks. Instead, I had to be in the
hospital and I had just been told how it was.
TO BE CONTINUED!!!!!! |